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“Our little angel is going to leave us”

This is a blog post I wrote on the Swedish Forum  Familjeliv.se on January 26, 2007:

Ingrid Eva Linnéa“On 18 September 2006 our little angle was born. She was perfect and we were so happy to have got such a pretty girl. At the 2-month check up the paediatrician discovered that she had wasn’t moving the way she should be, and we were referred to Children’s Hospital for further check-ups. On the 15th of December we were given the nightmare diagnosis that our little girl had spinal muscular atrophy type 1, and that most of these children die before the age of 1 year. So now we are sitting here waiting for the inevitable, that her muscles will become weaker and weaker. That she will no longer be able to eat by herself, and finally not being able to breathe any longer. HOW on Earth will I be able to handle this?? Is there someone who has something helpful to say? We are trying to be brave for her sake, but our hearts are right now breaking from all the grief. ”

If you know someone in a similar situation, please send them my link. It’s not about me, it’s about all those desperate parents that I might be able to offer a glimmer of hope. THANKS!

I remember… A poem to my Angel daughter on Mother’s Day

I remember the first day I could spot you on your cloud.

You were watering the plants, yellow and purple flowers, and as you poured the water and giggled, a light rain started to fall outside my window.

I was so thrilled to finally have found you again after all the dark clouds of grief had finally passed by and left a clear blue sky for me to enjoy.

We promised to continue growing our family so that you would have siblings, and we kept our promise. You now have a little sister and a little brother, and we love telling them stories about what you and grandpa Dagge are doing up in heaven.

When it snows, we tell stories about how you throw snowballs at each other, and on us as well, because we know how much you love to play!

When the wind blows, we tell stories about how you are drying your angel wings, that got wet when you went for a swim.

When the thunder scares your little brother, we tell stories about how you and the other little angels are having a Bobbycar race up in the sky, with the rainbow acting as the race track.

When the sun shines, we tell stories about how you are playing with a mirror, sending us beams of light and love. Playing with the light on our walls and ceilings, and your siblings are laughing as they try to catch the beam.

When the autumn comes, we tell stories about how you and the fairies are painting all the leaves in the most amazing, radiant colours.

And when the spring finally arrives after a long, dark winter, we tell stories about how you and the fairies arrange for all the flowers, trees and animals to come alive again.

How I love those stories, and how I love keeping you with us through them.

With love,

Mum

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WHY I do what I do

There are so many ways to pitch your business… But what would happen if I started telling people WHY I’m really in the business I’m in, from the heart? 

That question struck me as I was thinking of sending yet another “sales pitch” mail to all the networks I’m in. Do I want to sound like the current “Newsletter trend” or do I want it to come from the heart? When is it actually OK to speak from the heart without following all the sales pitch rules and formats? Are people going to find me weird if I do?

There is only one way to find out I guess, and that’s putting it to the test!

So WHY I’m in this business of Grief Recovery?

When we lost our firstborn daughter it dawned on me how little help there was for us as parents. We had received excellent medical care for our child, but when she had left us and all the medical equipment had been collected we were standing there with an empty crib, diapers, baby clothes, toys and all the rest of it that comes along with a baby. We now had to arrange all the practical details like organising the funeral, tombstone, documents for flying back to Sweden with an urn, insurance, medical bills having to be clarified etc etc etc.

Having to deal with all of that while in a state of chock and grief was mind boggling. There was no real list of support options presented to us, and I had to muster the energy to look for help myself.

I immediately signed myself up as support parent at the Children’s hospital and the palliative home care team here in Zürich to at least give other parents with the same diagnosis a chance to contact a fellow parent. But what about all the other people being stuck in loss and grief? How could I be there for fellow expats experiencing loss, living far away form their natural support system of family, friends, language and familiarity?

That’s when I decided to do the certification to become a Grief Recovery Specialist. I now work with my passion to help others getting unstuck, feel less alone in their grief and have someone listening to their story. I wake up every day feeling so blessed to be able to do this kind of work, and that our daughter taught me so much about life, death and all the things in between. Like my coach Edson Williams said yesterday, “Karin flipped the script from a bereaved parent to using the loss as an inspiration to help others.” That really warmed my heart.

So that’s WHY I’m doing what I’m doing! I just can’t stand the fact that so many are stuck and limited by their unresolved grief, and if I can just help a handfull of these people it’s worth it! And I just have to trust that the people needing my help will find me, in one way or another. Have a great weekend and start of February!

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