I just watched one of the latest videos by my friend Niall at Disrupting the Rabblement (go check his site out, it rocks!!) where he is calling bullshit on on your invulnerable self. It’s basically writing/telling about the stuff that you are scared of writing about, that makes you vulnerable and that means opening up with the true story even if it makes you feel insecure.
So here is one of the posts that I’ve been holding back with and that I now feel the need to write. Firstly because it might just help someone in some weird and wonderful way and secondly to put things in perspective for myself. Because what I do now is also scary. It’s scary to decide not to go back to the corporate world, it’s scary to start something new and see what the reactions from others will be, if any at all. But as you shall see, there is “scary” and “scary”. First I thought about doing this as a video, but it’s now after midnight and the whole family is sleeping! There will be other opportunities to talk about this in videos later on, I’m sure.
It’s about the scariest thing that has happened to me to date. The date was the 15th of December 2006 and we had been called back to the Children’s Hospital here in Zürich to get the results from the tests made on our first born daughter Ingrid, three months old. I can recall that I had even dressed more “hip” than normal as a protection I guess, because bad things don’t happen to “hip” people, right?
We were called in to see two doctors and one of them started telling us that Ingrid had been diagnosed with Spinal Muscular Atrophy type 1, a genetic disease. She went on to tell us that those children rarely live much longer than 8 months. By this time I’m sitting with Ingrid in my arms, rocking her and myself, whispering to all three of us “this is not happening, it’s not true” like a mantra, over and over and over again. They then gave us a list with phone numbers in case we wanted to get help in any way and then we were sent back home with our terminally ill baby girl.
This story changed our lives, and it has given me the strength to go out and find my life purpose. There are no coincidences in the Universe and I believe that Ingrid came to show me that I can do more with my life than hang around in a 9-5 job. What I do now, I do thanks to her and thanks to her sister and brother. I need to pull more strength from that story in order to help and inspire others, and telling it like it is is necessary in order to do that. I just can’t let what we went through, and survived, go to waste behind a desk in an investment bank.